Summary of the first six months of my treatment and the mental/physical ordeals I survived...
There were several more tests ordered by my oncologist: Bone Survey, Bone Scan, CT Scan of torso, biopsies of breast tumors and CT Scan of brain. The biopsies determined that my breast cancer was hormonal based (Estrogen Positive), so they prescribed Tamoxifen (one tablet a day), and monthly injections of Zoladex (to block my hormone production) and Zometa (bone strengthener).
I got a second opinion from Dr. Theriault, an oncologist at MDAnderson (MDA) who specializes in breast cancer with bone metastases. I found him by searching the MDA website and was so pleased to find a specialist in exactly the field of what my diagnosis was! After reviewing all my test results and meeting with me, he said that he agreed with the treatment plan and that Dr. Rodgers (my current oncologist) was with a very reputable organization. I later found out that they were once affiliated with MDA.
This put me at ease and I was ready to start my monthly treatments as I had already been on Tamoxifen for about a month. I had been dealing with a lot of pain (prescribed Vicodin) since starting the Tamoxifen, but was assured that this is not normal by Dr. Rodgers. The MDA specialist disagreed and said he usually prescribes a steroid to help avoid any 'spikes' in pain from the medication. This was my FIRST 'mixed message' from my oncologist. Dr. Rodgers finally prescribed the steroid, but it helped very little at this point.
My first injection (Zometa) made me very ill and the calcium level in my blood skyrocketed. I was very ill and out of work for over seven days. Dr. Rodgers' office brought me in on a daily basis to pump saline into my system to thin out my blood in order to lower the calcium levels -- all the while telling me that this never happens to anyone. Subsequent monthly injections have now included a pre-med for nausea -- after being told that, in fact, there are a lot of people that are very ill from this. With the pre-med -- I haven't been nauseous/sick since! This was my SECOND 'mixed message' from Dr. Rodgers.
The other part of my treatment included radiation of the largest tumor on my right pelvic bone. There were 10-12 sessions scheduled, but by the fourth one -- I had no energy/strength and felt so ill that I began to miss work and could barely get off the couch for over a week! Dr. Rodgers was not happy with this at all and demanded that I go back to continue the treatment. After gaining some strength back and able to go back to work, I re-started the radiology sessions again and, sure enough, after four sessions I felt the same way. Again, Dr. Rodgers was not happy with this and was verbally abusive as to how I shouldn't be feeling this way and that it isn't normal.
I couldn't believe what I was hearing -- was this the start of a THIRD mixed message? It just didn't make sense to me -- I felt awful and instead of trying to do something about it, he just kept chastising me for not finishing the radiation sessions. I even told him that the radiologist told me that it would take 6-8 weeks before I would be feeling better -- turns out it was more like 12-14 weeks! Anyway, after about 45 minutes of crying from frustration and defending myself I left his office and told him that I cannot handle this abuse and stress from any doctor. He sent his nurse after me to book my next appointment and I made it very clear that I would not accept that sort of abuse ever again.
I have continued my monthly injections through Dr. Rodgers' office and had Alyssa return with me to meet with him after that last fiasco! He was on his best behaviour this time and discussed further tissue biopsies to test against the various chemo medicines that are available in order to determine which one will react best to my tissue. I thought this was a wonderful idea after asking a few more questions about it.
Next appointment (no Alyssa) -- Dr. Rodgers totally back peddled on the tissue testing and wanted to prescribe two chemo medications for me (Abraxane and Avastin) -- one of which (after further internet research with Alyssa) was originally used for colon cancer and is very new to the treatment of breast cancer with some extremely serious side effects -- occasional nosebleeds and/or ruptured intestines that may lead to death if not brought to the ER immediately.
I asked Dr. Rodgers why he didn't feel the tissue testing was a good idea anymore and he said that it takes four weeks for the results to come back -- I explained that I didn't care about the time if it meant that I got the right medicine. Then he said the amount of tissue they would need would result in a mastectomy -- I explained that I was fine with that and to take them both as well as my uterus and ovaries! He was adamant that this chemo was what I needed and I began to feel like I was the only patient he's had in 30 years who actually asked questions, did research and made their own decisions! This was the last straw -- he made me way too nervous! I was not about to let him put that toxic crap in my veins that easily!
I went back to see Dr. Theriault at MDA! :D
More to come...
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